Sunday, August 05, 2012

Another Edition of my Random Thoughts

Here are a few of my random thoughts about very specific things.

1. One of my favorite things to do is make my nieces and nephew laugh. Whether it's by telling funny jokes, making weird faces, dancing silly, or by tickling them, as long as I get them to laugh, I'm happy. The biology of humor has always been interesting to me, especially the tickling sensation. Tonight, I decided to use Google to try to find out what is happening in our brain when we laugh. I found a pretty neat article on the subject on the web. I thought I would share.

2. This week, I went to my state's voc rehab agency to apply for services. There's no doubt that I was a bit uncomfortable. There's something about unloading all of your personal business to someone that will document it in a system that can be accessed by all of your former co-workers. It's rather unfair, in my opinion. There should be some kind of way to lock my info down to maintain my privacy, especially since I've had a dual relationship with the agency. Oh, well...

3. A couple weeks ago, I found out that I didn't get selected for a job I really, really wanted. I did get a phone interview, but that was about it. I wish I knew what it was I needed to possess to get called in for a face to face interview for that position. I hope I have better luck with the jobs I plan to apply for in the coming weeks.

4. I'm still working on my memoir. I've written about 120 pages. My plan is to complete the manuscript before I try to shop it to a literary agent. Hopefully, I'll be finished with the first draft of this project before November 1st.

5. I kind of sort of experienced a break up of sorts this week. While it is painful to let someone go, there are times when it really is the best thing to do. I wish we could still be friends, although I'm not sure if that's possible. In my rather narrow perspective, I believe that people who love each other should be able to love each other in and under varying circumstances. Just because the definition of the relationship changes, that shouldn't mean that the love has to disappear. Maybe it doesn't.. disappear. Perhaps some people only know how to demonstrate their love with certain people in a very limited way. I'm not sure... I'll admit to being a bit unsure of myself when it comes to issues of love and romance when I'm one of the individuals in the said relationship.

6. Someone I love very much has cancer. Every day, all day, I pray for her. It's so hard for me to consider the future. The idea of her not being present is far too much to handle. So, I will continue to look ahead, only one year at a time. Sadly, I've been doing this every since my mother had her first stroke. That's been about ten years now. So, I have plenty practice when it comes to limiting my range of imagination as it pertains to my future.
It is certainly my prayer that my family member is with us for years and years to come. God bless her and others as they battle cancer.

7. This week I found dozens and dozens of blogs that I want to take a look at. It's my plan to check out at least a blog a day for the next 30 days. As I find blogs that I really like, I'll post them to my blog roll.

8. I got a new bedroom group. It's cute! I'm really enjoying being in my room these days.

Saturday, August 04, 2012

Something New

I'm so excited. I bought my three-year-old niece some flashcards to teach her how to identify the most common colors , shapes, numerals, and the alphabet. Because I wanted to be able to work with her myself, I put braille labels on the cards. Although I taught my other niece and nephew a great deal when they were in their pre-school stage, it was all verbal. This will be the first time that I have taken on the challenge to teach a child something that is so visual. So far, she and I are doing well. Wish us well as we both learn something new!

Angela Braden

P.S. I'm going to finish the second half of the Superwoman Syndrom post in the next 24 hours. Be on the lookout.

Monday, July 30, 2012

The Superwoman Syndrome (Part 1 of 2)

In the last ten years, a number of my friends and family members have endured a number of major challenges and suffered some significant loss. There response to their experiences with loss and hardship have been what I think of as normal. They admit and demonstrate sadness, grief, frustration, anger, hopelessness, and depression. While I think all of these responses are normal, I do feel that people should do whatever they can to rise from the ashes and find their way to a place of healing, wholeness, and recovery.

Do I think it's easy? Of course, not. It takes a lot of hard work to dig yourself from the rubble of your shattered pieces of your life. However, I think that staying underneath all of that rubble will only cause further injury, more loss, and possibly even death.

Nearly thirty years ago, I started losing my eye sight due to an aggressive case of Glaucoma. Almost overnight, I went from being a highly active kid, who love to read, write, ride bikes, paint, sculpt pieces of art, and play kid sports; to a frightened, sick kid, who was locked within the blinding uncertainty of each day. I couldn't see well enough to read any of my books, ride my bike, play sports with the other kids in the neighborhood, or paint. Even my handwriting took a hit. My once perfect handwriting and cursive started looking like oversized chicken scratch. I felt sad, hopeless, ashamed of my physical disability, punished, victimized, and deeply depressed.

At the age of thirteen, my family made a decision to send me to Austin, Texas to attend the Texas School for the Blind and Visually Impaired. Being forced to go to the state’s blind school was the icing, the whip cream, and the candle on top of my two layer cake of total despair. The only thing I thought could happen to me that was worse than what I was already going through was total sight loss. So, I made a decision at thirteen that I would kill myself if I ever lost all of my sight. I was fully convinced that I couldn’t live my life as a blind person.

Each night, I would call my mother and father collect from the payphone in the girls' dorm and cry on the phone at least fifty percent of the conversation. They would try to console and encourage me to be strong. After I would get off the phone with them, I would give it a try, but I would still fall in my mode of feeling weak, depressed, and hopeless.

I would also call my mother’s friend, BJ, who later became a great friend to me. I would tell her all the stuff I would tell my parents when I would call them. She also made strong attempts to cheer me up, but depression still burdened me. One evening, I called BJ with heaviness on my heart, tears in my eyes, and whining in my voice. BJ said something to me that I will never forget.

“Okay… You’re blind. And at this point, there’s nothing that any of us can do about it. It’s time to end that pitiful, poor me, blind, little girl bullshit. What are you going to do with the rest of your life? It’s not up to your mama or your daddy to make the best of this situation. It’s up to you.”

That challenge shocked and even slightly offended me. However, my spirit was awakened and jolted into a place of self-confrontation.

What was I going to do with the rest of my life?


**I’ll post the other half of this tomorrow.**

Sunday, July 29, 2012

Blogging While Disabled

I'm thinking about starting another disability blog. This particular blog will not just focus on one disability. The new blog will be a platform to allow individuals that have been impacted by disability to share their stories.

I'm going to need help with this project!!!!!!!!! I already know I can't do it alone.

So, please pray that I get connected with those that can and will help this new initiative achieve great success.

I'll keep you posted.

Angela Braden
Award Winning Blogger

Tuesday, July 24, 2012

Getting Back in the Groove

Almost a year ago, I began the journey to write my first memoir. A few months into the project, I became distracted with the usual suspects; family medical illness, unpaid bills, and wavering confidence. Well, I'm back at it. This time, I'm going to write until the first draft is complete. I will not allow one day to pass me up without writing for at least an hour. Wish me well.
And while you're wishing me well, go ahead and pray that when I finish this project, a literary agent and publishing house is waiting for me be their next successful author.

Smooches,
AB

Monday, July 23, 2012

New Blogger?

Google has introduced their new Blogger interface. It appears that Blogger users will be forced to move to the new platform in the coming months. I certainly hope this move will be a polite, easy adventure. I would hate for my new home on the web to be unfriendly, barrier heavy, and inaccessible. So far, Google has a pretty good track record. Let's hope they maintain their trend to be considerate to blind computer users.

Saturday, July 14, 2012

My birthday turned out okay.

For those of you that read my post the other day, please find comfort in knowing that my birthday turned out okay. It was a relatively quiet day. Thankfully, there were no fires to put out, no gunshot wounds to nurse, and no hot lava chasing me after an unexpected volcanic explosion. I made my family promise to give me 24-hours of drama free energy. For the most part, that's what they did. A day void of a crisis is a great day for me. It's worth more than any birthday gift you can find for me at the mall.

I will admit that my birthday was made special by all of the beautiful posts my family and friends left on my wall on Facebook. Sometimes, FB gets on my nerves. But on my birthday, I love it! It's not that I'm attention hungry. I just love reading posts from people that have touched my life in one way or another. It helps me remember how blessed I am to know so many absolutely groovy people.

I ended my birthday with dinner with my friend. He and I went to a texmex restaurant near my house. The drinks were okay. And the food was less than okay. But the company was great!!!!!! I appreciate him for insisting on getting me out the house.

Well, I'm already looking forward to my next birthday. My plan is to do something special in a beautiful city that I've never visited before.

Be well and in peace.

Angela

Wednesday, July 11, 2012

On the Eve of my Birthday

Here I am, only a few hours away from my birthday. Instead of me feeling happy, I'm incredibly frustrated and perplexed with almost every area of my life. I'm almost tempted to have a pity party instead of a birthday party. But I'm not going to do that. I'm going to insist on finding any and all reasons for me to be happy to be alive.

Message to me from me: Happy Birthday Angie. Don't let your family steal your joy, peace of mind, or compassion.

Sunday, May 27, 2012

Q&A Regarding Braille Labels

The other day, one of my Facebook friends posted the following as her status update.
"Can someone explain how braille works? Does a person with visual impairment need assistance to find braille? Are signs generally in a standard location? Does anyone know anyone who reads/uses braille? Do they find it to be helpful in asserting their independence? Just curious."

Here's my response to her initial inquiry.

"If traveling alone, I absolutely rely on the braille markers in buildings to navigate and confirm that I've arrived at the right place in the building. Furthermore, I use the braille labels in elevators to select which floor I would like to go to. When staying in a hotel by myself, I rely on the braille label outside of my room to make sure I'm trying to enter the right suite. There is no doubt that the braille labels create more accessibility for the person who is blind.
BTW: While technology has made amazing strides in the world of the blind and visually impaired, braille literacy is still critically important.
My microwave, washer and dryer, and oven timer has braille labels. I use braille notecards when I'm giving a speech.
Of course, I probably use technology 90% of the time as it pertains to my independence. However, the 10% of the time I use braille, I'm glad that I have the skill and access to such a wonderful tool."

My response sparked more questions from my friend.

"Angie, when you are out, how do you know where to find the braille markers? I don’t think I’ve ever seen you use braille. Is the placement standard? Are there national guidelines as to the dimensions and placement of the markers so you know how/where to find them? You can make your own braille notecards? So a braille writer is like a word processor? Angie, you already answered my next question, which was about what % of the time would you say that you use braille? Are the braille labels in the house custom?"

My response...

"I don't know if there is an ADA guideline that is used to mandate where the braille labels must be placed. To be quite honest, I've noticed the braille labels in different spots. Sometimes, they are to the side of the door. Other times, the labels are on the door, right above the door handle. I guess it all depends on the facilities manager and/or engineer.
I very seldom travel within buildings that I haven't been introduced to by a sighted person for the first go round. I always ask the sighted person who is introducing me if there are braille labels that I can use to help me navigate if or when I may be alone. If you've noticed, many of the braille labels are also accompanied by large, embossed, print letters. I also feel those labels to help me navigate, being that I still remember what print looks like.
Do I go around feeling all of the braille labels posted in buildings? Absolutely not. More often than not, I count doors, openings in hallways, listen for the sound of open space, air condition units, and vending machines to help me navigate. But if I'm trying to make sure that my orientation has landed me in the right place, I like to have a braille label there to make sure I'm entering the right room.
Blind or sighted, it's not cool to barge in the wrong gender specific bathroom. Know what I mean?
Answer to your next question...
I have two manual braille writers here at my house. I also have a braille printer that works conjointly with special software on my computer. That software converts print into braille code. And the braille printer spits out what was once print in a form that is accessible to the blind. YAY BRAILLE!
I do not use my manual braille writer or the braille printer often. I have found that the speech on my computer systems is more convenient. However, there are some special instances that I prefer braille.
Part of the reason why I prefer speech over braille in most situations is because my Braille reading speed is slower than I need it to be. I can type it fast as lightening. But I read it slow as a snail.
Since I'm a person that has to do things fast, I use the tool that is the fastest for me.
Remember, this is my unique stance on the aforementioned. Every blind person is different.
Here's the answer to your last question... No, the braille labels in my house are not custom. I have a hand-held braille machine that I use to make braille labels. I type what I want the label to say, and post the label where I want it to be."


**If any of you have questions like the above for me, post them here. I'll be glad to answer! That's what NuVision for a NuDay is all about!!!!!!**

Thursday, May 24, 2012

Preparing for the 18th Time

Next Friday, I'll be exchanging my easy, breezy, summer outfit for a thin, hospital gown that has been worn by countless other people that are sick enough that they need to actually be in the hospital. **I certainly hope they use hot, hot, hot water and bleach to wash the towels, linen, and gowns in the hospital.** Let me move on before I stall here. LOL

While this will be the 18th time I'll be having a surgical procedure, this surgery will be the first time I will have this particular part of my body cut on. Honestly, I'm not looking forward to being forcibly put to sleep by the doctors, just so they can poke, probe, and cut on me, all without me sensing anything at all. My only comfort is that I won't feel the pain that they'll be causing me during the surgery. Likewise, I take comfort in knowing that the end result of the surgery means that I'll be free of the pain this medical condition is causing me.

The docs have informed me that I'll have about a week of recovery time. I guess I'll be in my bed catching up on sleep, and for sure catching up on my reading. The Texas State Library has updated their digital book catalog.
So, I'll be cozying up with a few John Sandford books and the latest from John Grisham. Yay!

Perhaps I'll post another entry before my surgery. But just in case I don't, go ahead and wish me well now!
Smooches!

Wednesday, May 09, 2012

The Final Status Update

It has just dawned on me that when I die, my various homes on the web will be the place my friends and family will come to memorialize me as soon as they hear of my passing. That's exactly what I've done for a few of the people I know. As soon as I get word of their departure, I go to their FB page and spend a few moments with their status updates they left behind as tiny treasures. I even read some of the kind words people post on their walls.

Perhaps it may be strange to some, spending a little time on their social network pages helps me feel like I'm getting a chance to spend a few more moments with that person. I believe that in a way, FB immortalizes our thoughts, ideas, and even expressions of our personalities.

I don't know why it never dawned on me that people would one day visit my social netowrking sites after I'm gone. I guess it's because we seldom give "real" energy to the fact that we will all pass from this life to somewhere else. But the truth is that we all will leave here one day. And most of us will not get a chance to change our FB status or post a new blog entry to whatever we want our final words to be.

At this point, I've asked my family to leave my FB page up for a year after I die, but to leave my blog up for as long as Blogger allows it to stay up.

I leave you with this question.... What does your presence on the web say about the life you've lived?

Tuesday, May 08, 2012

42 Things I really Hate

Of course, this is not all the things I hate. This is just a quick list of things that just popped in my brain this morning.

1. Bullies
2. Bugs
3. Rats
4. The way many sighted people. perceive blind people
5. A rocky airplane ride
6. Cancer
7. Stroke
8. Glaucoma
9. Overly Priced Consumer Goods
10. Feeling void of control.
11. Not being able to see the people I love.
12. Whatever gene that makes a body prone to holding on to fat!
13. Not being able to be as mobile as I would like.
14. Betrayal
15. Mental Illness
16. The pots lack of empathy and sensitivity for the skillet. **The nerve of the pot!**
17. The taste of coconut
18. 08/02/2002 **The night Mama had her stroke**
19. My inability to say no when I need to not just say it, but scream it.
20. Not having enough money to frequently manufacture moments of happiness and bliss.
21. Not having enough money to change the lives of the people I love.
22. That I never learned how to swim.
23. That they still haven't found a way to reverse my blindness.
24. Dealing with people with explosive personalities.
25. My lack of will power. **If only I could stay on track...**
26. Racism, Xenophobia, Sexism, and Disabilityism
27. Not having a magic wand, a crystal ball, and/or supernatural powers.
28. Not having the ability to time travel.
29. Feeling like I need to pretend to be happy, strong, or at peace curing those many moments when I'm not.
30. Stepping in puddles or mud, whether I'm barefot or with shoes on.
31. The smell of a soiled diaper
32. Green Peppermints
33. Touching Spiderwebs
34. Not knowing how the story is going to end.
35. Nasty Public Restrooms!
36. Eye Pain
37. That the info-guide on my television is not accessible to the blind.
38. Ridiculous storylines on the Young and the Restless
39. Raw Onions
40. SPAM
41. The smell of a decomposing body
42. that I have a strong fear of rejection.